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Peter Reynolds

The life and times of Peter Reynolds

Posts Tagged ‘Billy Caldwell

While The NHS Is Failing People, Small CBD Companies Are Stepping Up.

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Alfie Brocklebank

Canabidol CBD Oil

 

 

 

 

 

 

 

 

 

 

 

When Sajid Javid introduced the new regulations on cannabis for medical use last year, it brought hope to hundreds of thousands of people.  Now the NHS is routinely letting patients down and refusing to provide the medicinal cannabis they need.  The law no longer stands in the way but many people are in despair at the cruel and ignorant response of the medical establishment and NHS bureaucrats.

Not least the parents of Billy Caldwell and Alfie Dingley, the high profile cases of children with severe epilepsy, whose stories provoked the media outcry that eventually forced a stubborn government to take a proper look at the evidence.

Remarkably, small CBD businesses are stepping up when the NHS is letting people down and offering to provide CBD free-of-charge to those in desperate need.  And these really are small businesses, little more than the internet equivalent of a corner shop. Even the largest of them is tiny compared to the financial turnover of the smallest NHS hospital.  The owners of these small CBD businesses are funding these donations out of their own pockets and not asking for any PR or publicity in return.

Billy Caldwell is now approaching 100 days in exile in Canada

Billy Caldwell is exiled in Canada again because there is not a doctor in the UK who has the courage or the care to prescribe the cannabis oil he needs containing a small amount of THC.  This is mainly due to the inaccurate and, it has to be said, negligent guidelines from the British Paediatric Neurology Association, which has recommended against prescribing even tiny amounts of THC to children.  Its guidance is based on a misguided interpretation of evidence on the harms of adolescents smoking large quantities of high THC cannabis as a recreational drug.

Billy is OK because a consultant neurologist in Canada who understands cannabis as medicine has prescribed an oil with THC which is working perfectly for him.  It’s just that he’s away from his home and his family.  The doctors and NHS bureaucrats at the Belfast NHS Trust don’t care about that.  Their primary concern is sticking by manifestly stupid guidelines to protect their own careers within the establishment structure.

Take note that the media, so keen to publish Billy’s story before, has lost interest.  He’s still being reported as the poster boy for UK medical cannabis reform but the cruel irony is that the reform has failed him.

Another case in point is Alder Hey Children’s Hospital in Liverpool.  There, one consultant neurologist is prepared to follow the evidence, rather than sticking with failed pharmaceutical medicines. He has prescribed medicinal cannabis for at least two children with epilepsy but the hospital management has stepped in and cancelled them, refusing to allow his clinical judgement to prevail over their bureaucratic procedures.

Both children are in severe distress.  Alfie Brocklebank has Tuberous Sclerosis Complex (TSC) which causes him to have many seizures every day, each one of which is life threatening. The medical director at Alder Hey said he did not meet the criteria to be prescribed medical cannabis so his parents started buying CBD at a cost which soon reached £170 per week. Alfie’s mother Ellen is a nurse, so she knew what she was doing.  Alfie’s seizures stopped.

Ellen Brocklebank

But Alder Hey still refused to prescribe Epidiolex, the GW Pharma CBD medicine, and they wouldn’t help with the cost of the over-the-counter Canabidol CBD which was working so well.  The family simply couldn’t afford to keep spending £170 per week on the oil.

See Alfie Brocklebank’s story here as reported by ITV News.

It was Billy’s mother, Charlotte Caldwell, who reached out to CLEAR.  Canabidol CBD is a CannaPro Certified business, endorsed by CLEAR  as an ethical supplier of legal, high quality CBD products. As soon as we spoke to Tom Whettem, CEO of Canabidol, there was no hesitation.  He immediately undertook to provide the oil that Alfie needs at no cost – and there was no question of wanting anything in return.

Alfie’s mother, Ellen, takes up the story:

“Alfie is starting play school next week. Before we started the CBD this would not of been possible as he was just to poorly and having lots of seizures. Alfie going to a main stream play school with his sister is a huge milestone.

We are also slowly coming off Alfie’s conventional anti-epilepsy drugs as well. I’m nearly 100% sure we wouldn’t be able to do this if Alfie wasn’t on the whole plant extract CBD. The neurologist actually told me in his opinion Canabidol CBD is most likely to be more effective than the Epidiolex.”

A number of other CBD companies have now stepped forward and offered to supply oil to people in need who have been turned down for an NHS prescription. As a result, CLEAR, through its trade association Cannabis Professionals, is launching the CannaPro CBD Compassionate Access Programme.

CannaPro CBD Compassionate Access Programme

Applications should set out details of the patient’s condition, any experience with CBD so far and an explanation of the refusal to prescribe on the NHS.  Please email applications to cbdaccess@cannapro-uk.org. All applications will be confidential and considered by a small sub committee of the CLEAR Executive Committee.  Where we are able to recommend that a patient join the programme we will inform the applicant and introduce them to a donor company.  Donor companies will be allocated in strict rotation according to the date they first offered to participate.

 

 

 

 

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Bring Billy Home. The NHS Has Denied Him His Medicine Again. He Is Back In Canada.

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It’s probably the most shocking outcome of the new regulations on cannabis that the boy whose story created the change is in exile again.

Billy Caldwell, loved and adored by the whole nation, is back in Canada with his mum Charlotte because there is not a specialist doctor in the UK who will prescribe the medicine he needs.

He has written a heartbreaking letter to Santa, saying he doesn’t want any toys this year “My Xmas wish is to go home with my medicine”.


I doubt whether there has ever been a time when the British people’s opinion of doctors is sinking so fast.  Previously held in absolute reverence, more and more are realising that doctors are only human and some of their human characteristics are, frankly, disappointing.  I’ll go further, some are disgusting.

Dr Chad Taylor of Jersey General Hospital

Doctors no longer sign the Hippocratic Oath but they are expected to abide by professional standards. You’d expect ethics or morals to be at the top but that doesn’t seem to be the case. Many are uninformed, frightened, ignorant or ideologically opposed to the use of cannabis as medicine.

In some cases, such as Dr Chad Taylor, they prefer their duty to their professional body than their duty to their patients.  Dr Taylor says he has “no intention of bending to this pressure” and insists that his “only obligation as a medical practitioner is I’m duty-bound to follow my professional guidance”.

Dr Tom Smith of Guys and St Thomas’ Hospital

Another, Dr Tom Smith, falsely claimed in writing that he wasn’t “allowed” to prescribe for chronic pain, despite his patient having previously found cannabis effective when prescribed in Holland.  Strong opioids don’t work for his patient but all Dr Smith could say was that the epidemic in opioid addiction could soon be an epidemic in cannabis addiction.

The level of ignorance, wild misinformation and bigotry amongst these so-called professionals is astonishing.

Returning to Billy’s story,  CLEAR has been able to offer advice and guidance to Charlotte Caldwell which we believe provides a method by which Billy may legally return home with his medicine in time for Christmas.  That’s the Christmas gift we all want – but not just for Billy. We want British doctors to open their eyes and their ears and start learning what doctors all over the USA, Canada and the rest of Europe already know, cannabis is a very safe and effective medicine.  Instead of being afraid of it they need to start putting their patients first.

Written by Peter Reynolds

December 12, 2018 at 4:59 pm

Letter To Nick Hurd MP, Home Office Minister, About Alfie Dingley’s and Billy Caldwell’s Urgent Need For Cannabis Medicine.

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From: Peter Reynolds

Sent: 12 June 2018 10:16

To: ‘nick.hurd.mp@parliament.uk’

Cc: ‘Charlotte Caldwell’

Subject: Give Billy back his medication.

Importance: High

 

Dear Mr Hurd,

The Misuse of Drugs Act 1971 makes specific provision within it that the Home Secretary may licence any action under it that would otherwise be unlawful.

There can be no credible excuse whatsoever for refusing to licence Billy Caldwell’s and Alfie Dingley’s cannabis medicines when they have been proven to work under the supervision of senior doctors and the medicines themselves are produced by reputable, government regulated companies.

UK drugs policy is now the most regressive, backwards and cruel of any first world nation. Specifically on the medical use of cannabis it is evidence-opposed and causing great harm, far more harm than is prevented by a policy that is based on nothing but ignorance and prejudice.

It is nothing but an excuse to argue that all drugs must be properly tested. Cannabis is the oldest medicine known to mankind, it has been used safely and effectively for at least 10,000 years. Only in the last 100 years has this diabolical experiment of prohibition wreaked havoc across the world in exactly the same way as the prohibition of alcohol.

Cannabis contains around 500 molecules and it is impossible to regulate in the same way as a single molecule pharmaceutical product synthesised in a lab. Trying to force regulation of cannabis into the MHRA process is absurd. The MHRA was designed by the pharmaceutical industry for its products. It is run by people from the pharmaceutical industry. It is not fit for the purpose of regulating plant based medicines.

This is why in every jurisdiction throughout the word where there is legal access to cannabis, it is regulated by a special system separate from pharmaceutical products. This is the nettle that the UK government needs to grasp if it is to fulfil its responsibility.

In the meantime though you must ACT NOW for Billy and Alfie. Any further procrastination will amount to negligence and dereliction of duty for which you and other ministers will be held to account.

Yours sincerely,

Peter Reynolds

President
CLEAR Cannabis Law Reform

Written by Peter Reynolds

June 12, 2018 at 9:46 am