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Peter Reynolds

The life and times of Peter Reynolds

Posts Tagged ‘British Paediatric Neurology Association

Asking Politicians to Order Doctors to Prescribe Cannabis is a Futile Quest

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Last year, when Sajid Javid introduced the new regulations permitting prescribing of cannabis-based products for medicinal use (CBPMs) he went much further than anyone could have expected.

For 50 years doctors had been told that cannabis was a highly toxic, dangerous drug with no therapeutic value.  Then, in the space of few weeks they were suddenly told by the Chief Medical Officer that there was “conclusive evidence” of therapeutic benefit. The truth is successive governments and the Home Office had been engaged in systematic disinformation and lies about cannabis. Suddenly they expected doctors to believe exactly the opposite of what they had been told before.

In fact, what Sajid Javid really did was to pass the buck, so while I have some sympathy for the predicament of doctors and total contempt for our pathetic political class, the buck is now in the right place.  However, we have a medical establishment that is so risk averse and so crushed by bureaucracy that it is transfixed by the challenge of getting to grips with cannabis and there is a total lack of leadership from the Royal Colleges or any of the professional bodies. The ultimate demonstration of this is that the British Paediatric Neurology Association wants doctors to consider brain surgery for epilepsy before prescribing cannabis.  This is a profession that has lost touch with reality and common sense.

The result is that doctors will not prescribe cannabis but the idea that they can be ordered to do so by politicians is a non-starter.  It is difficult to understand what campaigners hope to achieve by marching on Westminster and lobbying MPs.

Eventually, the efforts that are being made in medical education will bear fruit and doctors will start to prescribe but this will take time and many will suffer while they wait for doctors to catch up with what is already well understood in many parts of the world.

So what can be done?

Government can take action on two fronts which will accelerate progress. First of all, improve supply.  By its own admission, in response to an FOI Request, the Home Office has done nothing to facilitate production of CBPMs. This could be changed immediately. There is a queue of well qualified and financed companies ready to develop production facilities.  While Sajid Javid cannot order doctors to prescribe, he can order his reluctant and backwards officials to issue licences.  Within a year we can have a domestic supply of CBPMs and the doctors will have something to prescribe and products they can become familiar with.

The second way government can act is on regulation.  Doctors are terrified of cannabis and need reassurance. Everything they have been taught goes against prescribing cannabis.

However, cannabis is safe for 99% of people. We know this from 10,000 years of experience. The hysterical scaremongering from places such as the Institute of Psychiatry are actually aboput a tiny proportion of people using high strength cannabis as a recreational drug, a totally different circumstance to a high quality medicinal product used under close supervision. As a plant-based medicine, cannabis contains 400 – 500 molecules unlike pharmaceutical medicines which are usually a single molecule. It is impossible therefore to regulate cannabis in the same way as pharmaceuticals and given millennia of experience it is unnecessary.

In every other jurisdiction in the world where cannabis has been made legally available for medical use a separate system of regulation for it has been established. Until UK follows this path, the pharmaceutical-funded medical establishment will never accept cannabis as a legitimate medicine.

So what politicans can do is free up the supply chain for CBPMs and regulate them in an appropriate and rational way.  This is where we need to be focused in order to make progress and bring relief and a healthier life to millions.

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Written by Peter Reynolds

March 19, 2019 at 1:26 pm

While The NHS Is Failing People, Small CBD Companies Are Stepping Up.

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Alfie Brocklebank

Canabidol CBD Oil

 

 

 

 

 

 

 

 

 

 

 

When Sajid Javid introduced the new regulations on cannabis for medical use last year, it brought hope to hundreds of thousands of people.  Now the NHS is routinely letting patients down and refusing to provide the medicinal cannabis they need.  The law no longer stands in the way but many people are in despair at the cruel and ignorant response of the medical establishment and NHS bureaucrats.

Not least the parents of Billy Caldwell and Alfie Dingley, the high profile cases of children with severe epilepsy, whose stories provoked the media outcry that eventually forced a stubborn government to take a proper look at the evidence.

Remarkably, small CBD businesses are stepping up when the NHS is letting people down and offering to provide CBD free-of-charge to those in desperate need.  And these really are small businesses, little more than the internet equivalent of a corner shop. Even the largest of them is tiny compared to the financial turnover of the smallest NHS hospital.  The owners of these small CBD businesses are funding these donations out of their own pockets and not asking for any PR or publicity in return.

Billy Caldwell is now approaching 100 days in exile in Canada

Billy Caldwell is exiled in Canada again because there is not a doctor in the UK who has the courage or the care to prescribe the cannabis oil he needs containing a small amount of THC.  This is mainly due to the inaccurate and, it has to be said, negligent guidelines from the British Paediatric Neurology Association, which has recommended against prescribing even tiny amounts of THC to children.  Its guidance is based on a misguided interpretation of evidence on the harms of adolescents smoking large quantities of high THC cannabis as a recreational drug.

Billy is OK because a consultant neurologist in Canada who understands cannabis as medicine has prescribed an oil with THC which is working perfectly for him.  It’s just that he’s away from his home and his family.  The doctors and NHS bureaucrats at the Belfast NHS Trust don’t care about that.  Their primary concern is sticking by manifestly stupid guidelines to protect their own careers within the establishment structure.

Take note that the media, so keen to publish Billy’s story before, has lost interest.  He’s still being reported as the poster boy for UK medical cannabis reform but the cruel irony is that the reform has failed him.

Another case in point is Alder Hey Children’s Hospital in Liverpool.  There, one consultant neurologist is prepared to follow the evidence, rather than sticking with failed pharmaceutical medicines. He has prescribed medicinal cannabis for at least two children with epilepsy but the hospital management has stepped in and cancelled them, refusing to allow his clinical judgement to prevail over their bureaucratic procedures.

Both children are in severe distress.  Alfie Brocklebank has Tuberous Sclerosis Complex (TSC) which causes him to have many seizures every day, each one of which is life threatening. The medical director at Alder Hey said he did not meet the criteria to be prescribed medical cannabis so his parents started buying CBD at a cost which soon reached £170 per week. Alfie’s mother Ellen is a nurse, so she knew what she was doing.  Alfie’s seizures stopped.

Ellen Brocklebank

But Alder Hey still refused to prescribe Epidiolex, the GW Pharma CBD medicine, and they wouldn’t help with the cost of the over-the-counter Canabidol CBD which was working so well.  The family simply couldn’t afford to keep spending £170 per week on the oil.

See Alfie Brocklebank’s story here as reported by ITV News.

It was Billy’s mother, Charlotte Caldwell, who reached out to CLEAR.  Canabidol CBD is a CannaPro Certified business, endorsed by CLEAR  as an ethical supplier of legal, high quality CBD products. As soon as we spoke to Tom Whettem, CEO of Canabidol, there was no hesitation.  He immediately undertook to provide the oil that Alfie needs at no cost – and there was no question of wanting anything in return.

Alfie’s mother, Ellen, takes up the story:

“Alfie is starting play school next week. Before we started the CBD this would not of been possible as he was just to poorly and having lots of seizures. Alfie going to a main stream play school with his sister is a huge milestone.

We are also slowly coming off Alfie’s conventional anti-epilepsy drugs as well. I’m nearly 100% sure we wouldn’t be able to do this if Alfie wasn’t on the whole plant extract CBD. The neurologist actually told me in his opinion Canabidol CBD is most likely to be more effective than the Epidiolex.”

A number of other CBD companies have now stepped forward and offered to supply oil to people in need who have been turned down for an NHS prescription. As a result, CLEAR, through its trade association Cannabis Professionals, is launching the CannaPro CBD Compassionate Access Programme.

CannaPro CBD Compassionate Access Programme

Applications should set out details of the patient’s condition, any experience with CBD so far and an explanation of the refusal to prescribe on the NHS.  Please email applications to cbdaccess@cannapro-uk.org. All applications will be confidential and considered by a small sub committee of the CLEAR Executive Committee.  Where we are able to recommend that a patient join the programme we will inform the applicant and introduce them to a donor company.  Donor companies will be allocated in strict rotation according to the date they first offered to participate.

 

 

 

 

The Medical Establishment Shows Its True Colours On Cannabis. A Betrayal of Patients.

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NHS England has today published what it describes as prescribing guidance – ‘Cannabis-based products for medicinal use: Guidance to clinicians‘.

The actual guidance is buried within a mountain of bureaucratic doublespeak and requires downloading PDFs from the Royal College of Physicians (download here) and the British Paediatric Neurology Association (download here). In both cases, aside from chemotherapy-induced nausea, the guidance amounts to ‘do not prescribe’. This is a travesty of the intention of these reforms and demonstrates how the medical establishment is more interested in protecting its self-interest than in helping patients gain the benefits of cannabis as medicine. Cowardly and scared are the two words which best sum this up.

It’s no surprise that doctors in the UK are ignorant about the use of cannabis as medicine. They have been subject to the same relentless torrent of reefer madness propaganda from government and media as the rest of society. They have been prevented even from learning about the endocannabinoid system by the authoritarian policy of prohibition and any doctor in the UK who has any experience of cannabis as medicine will have been in breach of professional ethics as well as the law.

But it’s deeply disappointing that the authors of these documents have made no effort to understand the excellent work that is being done by medical professionals in other countries.  The Royal College of Physicians and the BPNA will be a laughing stock across the world in the many more enlightened and educated jurisdictions where patients are gaining great benefit. But of course, this isn’t a laughing matter. In fact, these two so-called professional bodies are making it a tragedy.

Clearly, what is in the best interests of patients is that we must bring in expertise from overseas.  There are eminent doctors abroad who will be glad to step in, particularly in private practice, and pick up this baton which the NHS has fumbled and dropped in the most clumsy fashion.

This is a huge opportunity for those in private medicine who can set aside these cowardly excuses and make the most of the new regulations for patients who are fortunate enough to be able to afford it.

For the average Briton with chronic pain, Crohn’s Disease or an epilpetic child this is a kick in the teeth from the profession that is supposed to care for them.

Written by Peter Reynolds

October 31, 2018 at 6:14 pm